Pressure Ulcer Prevention at Home StudyPosted on January 13, 2023 in News
The University of Leeds is looking for people to help with a research project about pressure ulcer prevention. You don’t need to know anything about pressure ulcers or research to take part. They are interested in what is important to individuals and how people care for themselves (or others) day-to-day.They would like to hear from adults (over 18) who live at home with a long-term condition that limits movement. For example, Multiple Sclerosis (MS), Spina Bifida, Motor Neurone Disease (MND), Muscular Dystrophy (MD), Cerebral Palsy (CP) or Spinal Cord Injury (SCI). They would also like to speak to carers and personal assistants who support people at home.
What is a pressure ulcer?Pressure ulcers (sometimes called bedsores or pressure sores) are patches of damaged skin and tissue. They are often caused by lying or sitting in one position (for example, when using a wheelchair). Some conditions can make it difficult for people to move around. They can also reduce people’s ability to feel and react to skin problems. Those things increase people’s risk of getting pressure ulcers. If left untreated, pressure ulcers can become a serious health problem.
What is the project about?Most pressure ulcers can be prevented, if people have the right support. The team is trying to find out what people need to help them look after their skin and maintain independence at home.
Who is doing the research?The research team is made up of service users, carers, personal assistants, researchers based at universities and health professionals. They strongly believe that service users, carers and personal assistants have important expertise on this topic.
What am I being asked to do?This is a very flexible project. The different ways that people can take part are outlined below. You can choose the level of involvement which is right for you.
1. Join a research groupJoin a group with other service users, carers or personal assistants. Groups will meet regularly over the next 2 years, supported by staff from the University of Leeds. Group members can take part in a range of activities, based on their individual interests and skills. For example:
- Sharing your experience of self-care or supporting others.
- Interviewing other people about their experiences.
- Making decisions about how the project is run.