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Articles from January 2026

Hope, Community and Living a Full Life with SMA Posted on in News

Many of you will have seen the recent news that Jesy Nelson has shared that her twin daughters, Ocean Jade and Story Monroe, have been diagnosed with Spinal Muscular Atrophy (SMA). It’s an announcement no parent ever expects to make, and our hearts go out to Jesy, her partner Zion, and their family.Jesy spoke openly about SMA [...]

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